The story

Eden was born with a congenital birth defect - her left thigh bone does not grow properly. This summer, she is undergoing a limb lengthening procedure at Sinai Hospital in Baltimore, MD through the Rubin Institute. It is an approx 6 month process. Chris and I are grateful for everyone's well wishes, and want to do our best to keep you all informed, so we decided to create this blog. It will also be a way for us to document this process and one day we will show it to Eden and she will know, she can conquer anything.

Tuesday, July 13, 2010


So this is what it looks like. There is a bar attached to her thigh bone, yes attached and it sticks out. The bone was broken right above the knee. Our Dr does pretty work, minimal scarring but he said when she is 18 he will fix her up nice with plastic surgery and really get rid of the scars.

There are also screws below the knee with a hinge connecting the pieces to provide support and re-align the knee as it was not quite right.

It is pretty weird and remarkable at the same time. It will take some getting used to, but she is still our beautiful Eden, only a bit bionic. She did not want us to take a picture, so she is well aware that there is something different about this. being the meanies we are, we took it anyway, but waited until she was asleep.

One last comment on the day, then we will try to sleep, we have only been up for 17 hours. A special thanks to Uncle Amnon who came by for a visit. For once his business travel worked in our favor - he was in the area (kind of!) Brightened up the entire day

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