The story

Eden was born with a congenital birth defect - her left thigh bone does not grow properly. This summer, she is undergoing a limb lengthening procedure at Sinai Hospital in Baltimore, MD through the Rubin Institute. It is an approx 6 month process. Chris and I are grateful for everyone's well wishes, and want to do our best to keep you all informed, so we decided to create this blog. It will also be a way for us to document this process and one day we will show it to Eden and she will know, she can conquer anything.

Friday, July 16, 2010

Post Op Day 3

The day did not start off so well. The nurse took Eden's catheter out last night around 8 then she went to sleep. At 2 pm she came in to give pain meds and informed us Eden must go on the potty or they wouldn't discharge and anted us yo try and get her to go. Again, it was 2 am! This did not go well, it resulted in a very upset Eden. Obviously half asleep, doped and tired she did not go. We finally got her to calm down and we agreed to try again in the morning - 6 am. Imagine trying to fall asleep after that, the adrenaline was pumping. I think I fell asleep finally at 4:30 and at 6 am, there was nurse Kristen, as promised. Eden was asleep so we had to wake her. Again, this did not go over well, but Chris held her over the toilet and or trooper once again came through and made pee! We watched some TV and all fell back asleep. We awoke to PT, OT, PA and Social Worker visits. Good news was the discharge papers were signed but they still wanted a PT session, we had to get meds and OT was going to make a plate to help keep her foot straight, it was flexed which could lead to nerve complications. It was ridiculous, we waited around all morning and the plate is ridiculous. We will figure out some thing netter on our own, The OT was a tool, clueless. She freaked Eden out again, just what she needed. But we calmed her down and where out of there by 2 pm. We arrived home to get Adina off the camp van, it felt so good to have her in my arms.

Chris ran out and got the BOSS, and Eden said no that is for babies. But she got in and was pretty comfy. We walked Adina over to her friends house who is leaving for sleep away camp tomorrow for a GNO send off. There were a few girls there and Eden finally livened up and was playful, she started showing her robot leg to people! So, definitely a good move taking her out.

We got home and Eden went potty twice, she even managed to sit on it herself, not comfortably, but she did it and made all her business. I am sure it will get easier each time.

We hope to get her standing tomorrow, but she FREAKED when PT tried it today. They say it is normal, so baby steps. She will be walking in no time, positive thoughts.

Chris will do the next post, stay tuned...

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