The story

Eden was born with a congenital birth defect - her left thigh bone does not grow properly. This summer, she is undergoing a limb lengthening procedure at Sinai Hospital in Baltimore, MD through the Rubin Institute. It is an approx 6 month process. Chris and I are grateful for everyone's well wishes, and want to do our best to keep you all informed, so we decided to create this blog. It will also be a way for us to document this process and one day we will show it to Eden and she will know, she can conquer anything.

Tuesday, July 13, 2010

Eden is in surgery. As the Dr put it, it will be like 3 seconds to her, 3 hours for him and 3 weeks for us. We wait. She seemed a bit scared but handled it all very well. She is an amazing little girl.

Yesterday pre-op we had xrays and the leg difference is measuring 6 cm now. After surgery last year it was under 5, so the growth continues to slow down. After this surgery, they hope to make her shorter leg 2 cm longer then the "normal" leg so in time it will even out.

The Dr said studies are showing this surgery actually also speeds up the growth rate, so if her leg was only growing at 70%, it may start to grow at 80&. But as in life, no guarantees. He said she will most likely need another surgery around age 9, but we will cross that as we get closer because medicine/technology is changing every day, and he envisions this process will even be different. They are experimenting with internal fixators. That would be nice!

Will post more when we are settled in her room...

1 comment:

  1. Good luck Ronit and Chris. Prayers and Positive Thoughts coming your way.

    ReplyDelete