The story

Eden was born with a congenital birth defect - her left thigh bone does not grow properly. This summer, she is undergoing a limb lengthening procedure at Sinai Hospital in Baltimore, MD through the Rubin Institute. It is an approx 6 month process. Chris and I are grateful for everyone's well wishes, and want to do our best to keep you all informed, so we decided to create this blog. It will also be a way for us to document this process and one day we will show it to Eden and she will know, she can conquer anything.

Wednesday, July 14, 2010

Day 1 post op


All in all, we had a good night. Eden slept through minus the wake up every 4 hours for vitals. She handled it like the trooper she is and went right back to sleep. I slept in bed with her and enjoyed being cozy, but sleep not so much. Chris slept on a pull out chair in the room and it was ok. Considering he never sleeps during the week, he actually got a decent night!

We ordered all of Edens favorites for breakfast, but she did not eat. Thanks to advice from many of you, Chris ran out and got DD munchkins for the nurse staff. They seemed to enjoy it.

We had a visit from OT and PT and got Eden into a wagon and took her for a ride to the playroom, She resisted at first but them did not want out of the wagon, She enjoyed playing with a baby doll.

The highlight was def a visit from her grandparents, as you see in the picture. Eden livened up and enjoyed playing with them. She is still not fond of the fixator, but when our surgeon came to visit she actually said yes to allowing him to look at it. She even says no to me and Chris. Interesting. He is pleased with how it looks.

Eden had her first PT session today and handled that well. Could be because of the epideral...but am thankful for her not feeling pain.

Her diet today consisted of pretzels, goldfish, potato chips, gummy bears, a banana and yogurt. Not the best, but we are happy to get anything we can in her. She spiked a bit of a fever this eve, but the dr said that is normal. So no worries yet.

We ended the night with her playing and she pulled out her IV. The nurse put a new one in, she did not love it but handled it well. The nurses said they wish every three year old was like her.

Tomorrow we get her wheelchair and walker, fun. We also learn how to clean her fixator, this will be a daily ritual.

So, like I say, game on.

Again, thx all for the text, emails, calls, facebooks, etc. The outpouring of support is keeping us going.
Good night for now....

3 comments:

  1. we're sending you sunshine and love from Maine and Hoboken. thanks for creating this blog.

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  2. Hi Ronit; lots of great karma from SF also! Tough times, but everything sounds like it is working out, and Eden is a rockstar for staying so upbeat throughout :)

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  3. am I aloud to comment?? I am just in love with this picture.

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