This week was too bizarre not to write about. It started off terrible. I was in a panic because Eden's pins sites seemed to open up. I mean, there were two gaping holes in her leg. It was gross and scary and I was freaking out. How can this be normal, or is it normal? What the hell do I know??? Jacob noticed and boy was he worried. We were on the phone and texting pictures to the Dr, again the marvels of technology, and it was late. So he asked us to please wake him when we know if she is ok. The uber-protector! We had already decided to start antibiotics just in case. But the on-call Dr showed the pics to Dr Standard and they both were pretty confident that I was an excellent photographer and that there was no infection. That said, another pin site looked a bit red and Eden said it hurt, so we decided to continue with the antibiotics. The Dr told us to just do wound care, clean with saline and keep it covered with gauze. I almost vomited cleaning them. Chris came in to help. The Dr explained that movement can cause the sites to open up, again GROSS. She said if we are concerned to come to the clinic on Tues or Wed. We decided to see how Tuesday goes....Monday night was pretty bad, The Dr said it is ok to give the pain meds more frequently, This is after they upped the dosage. But the Dr said ok, so we were giving it to her almost every three hours! Tuesday was ok, not great but ok. Tuesday night sucked again but I think it was more moodiness. Looking back, we were at an amusement park on Sunday and Eden rode a carousel, one of her favorite activities lately. It was an old one and Chris commented on how rough the ride was and uncomfortable she seemed. It is very likley that jarring motion could have opened up the pin sites. That is around when Eden started showing more signs of pain and discomfort.
Now, today...Wednesday. An AMAZING day!!!!
Her mood was good, she did well at PT. Her friend Molly came over (the monsters were having a fun day at Mitzvah Camp at Beth El) so it was just me and Eden. Eden had a blast with Molly. She played, ate, found ways to get around. She did not need her blanky or pacifier at all (relief). She was just in a great mood. When Molly left Eden continued to be independent and move around the house. She used the ottoman to get around or at one point I saw her get off the couch, sit on the floor and scoot on her butt to get to her walker, then walked into the kitchen and opened the fridge then the pantry and came out with a lollipop. I was so happy I let her get away with it. : )
She then asked to go upsatirs and rest in my bed watching TV. She was being quite mobile, and had not had any pain meds for over 6 hours. At one point, I looked over and Eden was laying on her side. A first! She looked so comfy. She loved sleeping on her side so I was so happy for her.
We had decided it is time to get Eden in her own room. Ayla has been amazing, but with school starting we can not let Eden keep her up and wake her every night. We were prepared for a rough time, but at 10 pm, we finished books and songs, I kissed her good night and she did not fuss!!!! We made a special trip to Target, bought her Dora sheets, put a monitor in her room and showed her all she has to do is say I need you and we will come. Not sure what did it, but she has been nicely in her room for an hour! And what did we do? Chris and I spent our free time cleaning out closets. Schmucks!
We are pretty confident she is ready to start school a few hours a week. We are lucky Beth El day care is being so accommodating.
So, with that said, we bid you good night!!!
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