We had a visit in Md yesterday, it was exactly 2 months post op as surgery was July 13. It was a hectic day as Ayla had a few issues at school while we were trying to get on the road. We handled what we could and then Sabba and Savta came to the rescue and picked up the peives. It was a 12:30 appt, we got there closer to 1 and saw the Dr at 3 pm. Right when Ayla, Jacob and my parents started to call to check in at the end of the school day so it was a bit hectic. Chris focused on Dr Standard and I focused on getting the twins settled via phone...so this is where we are via Chris...
Eden is now at 5.2 centimeters - the goal is 7. The left leg is now sightly longer then her right leg. This is causing a slight complication since she is bending the left knee to walk. The knee is not straigh but instead bent at a 13 degree angle. If it gets to a 15 degree, we need to stop the lengthening. Leslie (our PT) explained it is easier to get a knee to bend than to straighten, so we need to be on top of this. Dr Standard wants us to use the knee bar more often - we were doing it only at night and to help walk, this may help straighten the knee a bit. We also ordered a shoe lift for the right foot, irony. By putting a lift on the right foot it should also force her to straighten the left leg.
There is also some loosening at one of the pin sites internally. In the xray, you can see the open space around the pin in the bone. There is nothing we can do about this, but if it gets too loose he will need to operate again to replace the pin. Oh yeah. There is nothing we can do about this, so we hope it stays strong and we can avoid an additional operation.
He had us slow down to 3 turns a day instead of 4. Even though we are close to our goal, in theory only about 2 weeks away, it helps the bone harden if we slow down, so by going slower, the bone can harden quicker, thus decreasing the time the fixator will have to stay on post turning. Hope this makes sense to you....
Overall Eden is great. She is walking great with the walker and even a bit with out it. She can roll over and get around pretty well. She started day care in the mornings and is happy with her new class. The day is day care from 9 - 12 then PT. She is TIRED after that and sleeps well in the afternoons!
We go back to Md in 2 weeks and hope to be done at least with the phase of turning soon after. We will continue the updates.
That is all for now...
We have a "halo" around one of our pinsites too. That's what Dr. Standard called it. He told us about the "minor surgery" too to replace the pin. Ugh! Here's to hoping neither of us need it!! When is your next clinic visit? We'll be there Monday morning.
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