The story

Eden was born with a congenital birth defect - her left thigh bone does not grow properly. This summer, she is undergoing a limb lengthening procedure at Sinai Hospital in Baltimore, MD through the Rubin Institute. It is an approx 6 month process. Chris and I are grateful for everyone's well wishes, and want to do our best to keep you all informed, so we decided to create this blog. It will also be a way for us to document this process and one day we will show it to Eden and she will know, she can conquer anything.

Sunday, January 25, 2015

We're back.

January 25, 2015, today is Eden's 8th birthday. It has been exactly 4 years, and we are preparing for the next surgery. It will be in one week. We will blog again, and would love for you to join our journey again.

Good news is this time it will be an internal fixator, not erector set on her leg. We are aiming for 5 cm. I will take pics of the internal fixator and film the lengthening as it is magnetized and done completely different than our first go round. We really do not know what to expect except for three things -

  1. Eden will be great
  2. our family will get through this with laughter and love
  3. our wonderful friends and family are here to help us
Stay tuned....






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1 comment:

  1. Margery K.January 26, 2015 at 1:58 PM

    I hope everything goes well! what a strong little girl!! we are all praying for a speedy recovery!! xoxox

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